WHO: What is people-centred care?

Globally, 1 in 20 people still lacks access to essential health services that could be delivered at a local clinic instead of a hospital. And where services are accessible, they are often fragmented and of poor quality. WHO is supporting countries to progress towards universal health coverage by designing health systems around the needs of people instead of diseases and health institutions, so that everyone gets the right care, at the right time, in the right place.

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Comment (43)

  1. Great initiative! Here is why:

    Country: The Netherlands
    Age: 46
    I have been ill for 32 years
    Names of misdiagnoses: MS, thrombosis, whiplash, coronary issues, mental issues, chronic sinusitis, blabla, unknown muscle problems (nearly leading to an amputation)
    Name of proper diagnose: Lyme disease
    Amount of unnecessary tests: over 60
    There has been no informed consent, apart from the alternative Lyme treatments
    Estimate of the amount of inappropriate health care: a few years
    Amount of positive test results for actual diagnose: 1
    Outcome: I am either cured (or at least fully functioning) for the last ten years

  2. Hear hear! Here is why:

    Country: The Netherlands
    Age: 47
    I have been ill for 25 years
    Names of misdiagnoses: Fibromyalgia, chronic fatigue, mental issues, irritable bowel syndrome, asthma
    Name of proper diagnose: Lyme disease
    Amount of unnecessary tests: over 50
    There has been no informed consent, apart from the alternative Lyme treatments
    Estimate of the amount of inappropriate health care: 20 years
    Amount of positive test results for actual diagnose: 1
    Outcome: I am still suffering from Lyme

  3. Country: The NetherlandsAge 58 Female I have been ill for: 5 yrs severely ill.  Names of misdiagnoses: Fibromyalgia, ME, CFS, Polymyalgia, (by NIH Netherlands)Name of proper diagnoses: Lyme disease and other Tick Borne diseases, Co-Infections and Stealth Infections (by Augsburg lab Germany) I was not informed or consulted in the care I received for Lyme disease and other TBD by the NIH the Netherlands, apart from alternative herbal care. (Too expensive can't afford to take it any longer) . * Although I have been bitten by a tick, had the typical EM rash for Lyme Disease and was feeling sick with headaches and fever, but after a medical consult at the Lichtenberg Ziekenhuis in Amersfoort (the NIH) they sent me home with a steroid ointment and diagnosed me with "an insect bite" instead of [Tick- bite] – wrong diagnoses leads to wrong medicine treatment and the Borreliosis Disease and Co-infections leads to me having now CHRONIC LATE STAGE TICK BORNE DISEASES – just from that one tick bite! Never did I received any recognition from the NIH for having Lyme disease nor any antibiotic or any other treatments, only insults and wrong diagnoses. Amount of negative tests by the NIH: 1 …. [Due to DEARBORN] Results for actual diagnose of positive tests by Audsburg lab: 2
    Estimate of the amount of inappropriate health care: 7years  Outcome: Still severe ill, bedridden 90%

  4. Excellent, time to work with patients and listen to them.
    I live in the UK
    I am 67
    I was bitten by a tick in 2003 it took 4 years to diagnose me after seeing 5 doctors, 3 Rheumatologists and countless tests and x rays
    As my symptoms deteriorated I was diagnosed as having Fibromyalgia, hormonal problems, ME/CFS, Musculo skeletal disease, Polymyalgia Rhematica
    I was diagnosed with Lyme Disease after a chance course of antibiotics significantly improved my health even though I was on steroids for PMR at that time (my medical records showed the history of bite, EM etc.)
    Even after making huge improvements on antibiotics for Lyme Disease other doctors disagreed and took me off the treatment with no proper consultation and an immediate deterioration of my symptoms. There was no joined up thinking.
    The wrong diagnoses were all made empirically and no benefits were noticed from treatments given – marginally on steroids but I was not fully informed of consequences which were likely significant, because I was struggling with a bacterial infection.
    Countless unnecessary tests, scans and x rays but none that would look at function such as Functional MRI , Spect or Pet scans more likely to have shown the situation. Although hand X rays showed marked improvements when repeated years later after problems resolved on antibiotic treatment.
    Over ten years of inappropriate health care costs because the first doctor failed to recognise an EM rash, summer flu following a tiny nymphal tick bite could be Lyme Disease.
    Although I did not test positive for Lyme Disease, the test being antibody tests was unlikely to be positive as it wasn't done until I had had a year of steroids and several weeks of antibiotics which are known to skew antibody production.
    I was retired early from the Civil Service on ill health grounds but on long term antibiotics made a slow recovery – I regained my health and life and live a near normal life although still get relapses and still respond to further short term courses of antibiotics.

  5. Just another stakeholder putting best effort to make this effort successful. Here is why:

    Country: the Czech Republic
    Age: 36
    Time I have been ill: 10 months
    Names of misdiagnoses: CFS, suspicion of masked depression
    Name of proper diagnose: Lyme disease (MSIDS, respectively)
    Amount of unnecessary tests: 3 + 8 to rule out other diagnoses after Lyme disease was obvious to me but not to my infectologist
    Amount of positive test results for actual diagnose: 1
    Informed consent: There was informed consent for use antidepressants. There has been no causal treatment of Lyme disease offered by the infectologist.
    Estimate of the amount of inappropriate health care: 4 months
    Outcome: After I assessed the diagnose alone I searched a private clinic and received proper treatment there which improved my health condition. I haven´t ended the treatment yet, sometimes deterioration occurs but in the aggregate I´m getting better.

  6. I am a mum of a sufferer. 16 years of misdiagnosis by GPs with one in particular being downright offensive in his comments. Daughter is now 29. Various diagnosis looked at, it's a nightmare trying to research and self diagnose when your GPs dismiss it all. Various confections to complicate the matter. Now on a new treatment protocol. I am personally in the midst of contacting our MP to see what if anything he is prepared to do to get this out there, for the NHS to get off its backside and look at modern research and evidence instead of using outdated testing methods and ignoring the real evidence that the Lyme communities can supply. We can only live in hope, though the UK is a million miles away from providing solutions but I do think this current wave of action and shouting is at least publicising the issues sufferers, and their families, have to contend with.

  7. Thank you for this campaign.
    I live in the Netherlands
    I am 52
    I was bitten by a tick in 2012. I found the tiick after a day or so and developed an irregular rash (not a ring) that I associated with infection. I held an eye on it for 3 days and when it kept on growing, I went to my MD. She agreed this could very well be Lyme disease and given how I had 2 doxy treatments years before for a similar situation, we decided not to do any analysis but to get me on doxy for 12 days straight away.
    On my last day of treatment, I felt different. I was very tired after a short bike ride, and had not recovered from that after having travelling by train for 2 hours. I didn't trust to be better on the AB treatment after that, so I decided to do a detox for 2-3 days to see if the symptoms I had were from bacterial die-off due to the AB, or from a persisting infection. After that, I felt like my old self for 1-2 days – then the same symptoms returned. I then started my long journey of finding the proper treatment to recover. I was also 'encouraged' to do this, as in our country anybody with lyme who does not recover from this illness after the regular doxy treatment, is in fact cured according to our thought police. My MD also told me I should seek some 'other kind of docter' after the doxy magic bullet had misfired.

    I never had any further analysis beyond the check of a list of symptoms, which lead me and my therapist to believe I did not have any tick co-infections beside Borrelia.

    Due to all sorts of treatment, a stringent diet and the unavoidable personal development that is part and parcel of such a journey, with all the ups and downs, I am now close to being 'cured'. Luckily, I was never bad enough to not be able to work, so I did not have to rely on any social safety net other than family for a while. Contrary to many many other Lyme victims in The Netherlands, I did not have to take the stress and abuse of clowns telling me that nothing is wrong with me. It is HIGH time that the denial of lyme disease is put to a stop. On a personal note, I would find it very gratifying if a lot of the 'scientists' who have put their heads deliberately in the sand and betray us patients on a daily basis would be fired as a part of that change.
    Of course that last part would just be nice, not necessary 🙂

  8. Excellent initiative – thank you! I Iive in UK and have been sick for five years, and unable to work for two of those. 40yr old mother of two young children. I was misdiagnosed for four years with numerous conditions before being correctly diagnosed with Lyme disease and coinfections. Misdiagnoses included IBS, hormonal problems, chronic fatigue, migraines, even a floating rib. Saw 13 consultants – 3 rheumatologists, 2 endocrinologists, 2 cardiologists, neurologist, neurosurgeon, 3 gastroenterologists, an allergist and had thousands of pounds worth of ultrasound scans, MRIs of brain and spine, endoscopy, colonoscopy and blood tests. I am now improving and slowly regaining my health following private antibiotic treatment for Lyme disease and Coinfections. If only the consultant who ran a Lyme disease test on me at the start of my illness, had not dismissed the positive result as a false positive and had recognised my classic Lyme disease symptoms so much of my suffering and so many thousand pounds of healthcare could have been saved.

  9. The Netherlands, Alexandra Krijnen, age 43, mother and primairy schoolteacher.

    I had healthissues for a long time but in 2011 it got disabilatating due to, as we now know, LymeDisease.
    Wrong diagnose I got: Fybromyalgie and "not quite right in the head" were the most harmfull.
    True diagnose: Chronic Lyme Disease/ Neuroborreliose.

    I was not informed and educated enough to know and understand was going on with my body and what kind of treaments could/ might help. So I accepted the knowledge of the specialists/ doktors…. Its been a heck of a ride!!!

    The risks of sertain treatments where not explaned completely, the issue in case of a misdiagnose was never spoken about. (people, take notes of this!!)

    I am not a doctor so I cannot tell you how much useless testing there has been done. As a person I think it was also important to exclude things..

    There was only 1 good bloodtest and 1 petscan nesasary to come to the right diagnose.

    I was offered no care or help at all because of the misdiagnoses, which are things there is nothing to do about it, but I would/ could use some help.

    Unfortunatelly I am not better today, Since 2011 I have an inflammation of the nervoussystem and in 2016 found out that the inflamation travelled up to my brain.

    Even now I am fighting and I will stay fighting for as long as I can!!
    Sincerly.

    ps: To all the worlds Lymies: Please dont give up!

  10. My country South Africa is embarking on this role out called Universal health Coverage which is greatly needed; don't remember ever hearing about people-centered care in any communications.Feel it, people centered-care should be the back drop for Universal Health Coverage!!! Beautiful clip, straight to the point and self explanatory.

  11. What a great initiative, by having a health system that is focused around patient needs and 'people-centred care' more people should be able to have access to fundamental health care due to the savings made by eliminating 'wasted' or 'unnecessary' resources or testing. I think we can also relate this video to many different sectors, for example, education. If education was people-centred and provided in partnership with students, engaging, informing and supporting there could be a major break through of effective pedagogy in the 21st century.

  12. 1:20 may be very opportunistic …In South Africa it is not only about accessibility but Clinics being able to provide a suitable level of care which is delivered in time to effect those affected by disease. Absolutely critical within this presentation was the ENGAGEMENT and informing / directly or giving access to information and supported.

    Task shifting — peer review #AI and ongoing population analytics will drive the right care at the the right time at the the right cost … Prevention and comments like "what matters to you " is CRITICAL @Face_SA Vanessa Carter leading the initiative to engage and collaborate @aretahealth @slabbert_marc

    Virtual Hospitals , Telemedicine and Specialist networks will drive service rendering to patients regardless of their location .

  13. Thank you for this wonderful video! people-centred care is essential for all Health Care systems world wide. In Canada our system is not people-centred and that is why we have so many bad patient outcomes and in a Health Care crisis, and people in the community are suffering. You can view a video of my story and current situation as a patient within this Plea Video asking for Assisted Life with Self-directed Care – https://www.youtube.com/watch?v=T2c45uPBijQ
    Patients and People with Disabilities such as myself need help are so grateful for the great work that the World Health Organization is doing, such as the people-centred care initiative to raise awareness to improve Health Care systems. Your work is so very important WHO. Please keep up your great work WHO. Sincerely, Assisted Life.

  14. Great message. However, people – person: The video uses the term “people” as the centre of care. The term people denotes "human beings in general or considered collectively" (Oxford languages). This is unfortunate because to reach a person-centred care the individual and not the group perspective is important. The everyday conditions, health goals etc. can differ on an individual level and partnerships in care need to develop on this individual level.

  15. This is really great! We agree. Putting the patient at the heart of a healthcare service can have such a big impact. By simply asking patients what is important to them, you can reveal so much!

  16. Yes indeed, Great work deserve good recommendations, thanks to Dr Igudia on YouTube for curing my Diabetes with his herbal medication. I will forever tell the world about your good work.

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